If you’re not quite sure what a spoonie is please google it. It’s an amazing story behind it. This week has been a rollercoaster going down hill only. Being in a flare for an extended amount of time is draining. I m not sharing this to bring you down but to help you understand why we may not be chipper, on top of our game mentally, or up with a cup of  joe at 7am ready to start the day. Knowledge is power in this case, power in understanding we may need a little more time to do regular every day tasks. Big air hugs, well wishes, sweet text messages, and occasional calls are a great comfort. Have you hugged (socially distant that is) a spoonie lately?